TipToe Through The Tulips

Parkinson's Awareness Symbol

Our Personal Parkinson’s Awareness Symbol – Haddie: Age 5

As Parkinson’s Awareness Month comes to a close, I wanted to share our families tribute to this Parkinson’s symbol.  The elegant long-stemmed, tea-cup shaped blossomed tulip is the universal sign for Parkinson’s.  Last fall Hadley and I planted our “crop”.  Paying tribute to her father, hoping for a few to be spared by squirrels, take root and bloom.  We hadn’t noticed any signs that the fruits of our labor were successful until very recent and then our eyes were graced with the most spectacular sight we could imagine.  Not known for having a green thumb as both sets of grandmothers do, we were overly delighted.

The story of the Parkinson Tulip began in 1980 in the Netherlands when J.W.S. Van der Wereld, a Dutch horticulturalist who had Parkinson’s disease, developed a special tulip. Van der Wereld named his prized cultivar, the ‘Dr. James Parkinson‘ tulip to honor the man who first described his medical condition and his contributions.

The three petals symbolize love, hope and fight.  So this spring as you tiptoe through the tulips and admire the beauty of these perennials, please know there are millions fighting this disease, many more families and friends hoping for answers and all in the name of love.  Maybe, just maybe it will inspire you to plant these special tulips for someone you love too.

Parkinson's Awareness

Parkinson’s Awareness

6 thoughts on “TipToe Through The Tulips

  1. Pingback: Love. Hope. Fight. | Children of Parkinson's

  2. How inspiring! I will hold my tulip proudly. I’m a 45 year old woman who was diagnosed with Parkinson’s Disease in April 2013 confirmed second opinion by my Parkinson’s specialist neurologist. His theory is that my brain injury in 2005 triggered it to happen prematurely because I’m genetically predisposed and would’ve developed it when I was elderly anyway. I’ve had it for 8 1/2 years. After many years of misdiagnosis, it was almost relieved to finally find out what these weird symptoms were. I’m on medication, but life is still a struggle but I hold onto hope that medical science will be able to help us all in the near future. I pray for all of us. God bless you all!

  3. Magna, thank you for your encouraging comment. I actually found out I had Parkinson’s Disease in March by my primary physician whose practice has more than half of patients with the disease so she knows it when she sees it, but she was required to refer me to a neurologist for a specialist’s second opinion which was confirmed. I held onto the hope that maybe she was wrong, then when it was confirmed I went through the “why me” stage, the anger and emotion and “how could this happen to me”. But I found these feelings weren’t helping me and made the symptoms worse. I’m still Debbie and though I’ve had to make adjustments, life’s still good and I know that research will help us all thanks to people like Michael J. Fox who is my personal hero!

  4. I’d like to add that it’s so important to talk to others who have Parkinson’s Disease. While loved ones can be supportive and try to understand, they can’t possibly understand our daily struggles. My local support groups have patients that are far older than I am, so I find that blogging is very therapeutic because I talk to patients who are young onset (under 50) like myself. I recently talked to a 33 year old fellow Parkinson’s patient with 5 children. I don’t know how she does God bless her. I’m just trying to maintain the ability to walk and move the upper half of my body. Every patient’s struggle is different because no two Parkinson’s patients are alike. But we are a community of people who should show unity and stand together in demanding more research and treatment options to improve the quality of our daily lives. We are all in this together folks! Keep fighting!

    • Well said! The community is united and strong together! No two are a like but learning from each others challenges, struggles and victories helps us all be better! Thanks again for sharing !

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