Sleep Baby Sleep

Sleep Hadley Sleep!

The wonder her dreams are filled with.

The peacefulness of a child sleeping.

Mom mistake number 1 in parenting was made the first week Libby came home from the hospital. The blunder pediatricians warn and clinics are devoted to. The one where, at the library a vast section of parenting books are indexed on; how to avoid, solve, terminate and demystify.  Ring a bell? If so, you know the name Dr. Richard Ferber and my mistake…..sleeping with your child.

It began quite innocently and seemed so natural.  There was this new little life that we were responsible for. How could I close my eyes and sleep without her by us? What if she needed something and I didn’t hear!?  So, in one room there stood a beautiful new pristine white Bratt Decor crib and the other, a bed filled with 3 bodies.  At her 1 year check up the doctor declared “You have become Libby’s pacifier” and urged us to stop. I made an attempt to put and end to it but she sat there screaming, to the point that she made herself sick and I caved. It wasn’t worth it to me.  Four years later, we were welcoming a new blessing and the biggest transition was getting Libby ready to sleep on her own while we made the number 1 parenting mistake …..again.

Libby and Hadley are completely different as most siblings. From their demeanor, to their likes, fears and sleeping habits.  Libby lays there peacefully, in one spot, always on her side, ready to tell stories, share her day, say her prayers and close her eyes. In the morning she almost always in the same position.  Hadley the complete antithesis. She is never ready to surrender for the day! A ball of energy. Afraid if she closes her eyes, for just one moment, she may miss something. Even while sleeping, her body is constantly in full running motion.

I never gave much thought about how my children slumber until Don’s Parkinson’s diagnosis.  Don was a crazy sleeper and dreamer, always experiencing a game or practice in the middle of the night. Many times I was woken to a play being relived and I was a collateral practice dummy.  I attributed his sleeping habits to lack of it.  Coaches work non stop.  Watching and re-watch film until the wee hours of the morning.  So, it was natural to me that he couldn’t turn the switch off.  While pregnant with Libb, in the black of night, I was awoken to  Don “going for a ball” and “we” were in the way.  Many nights are spent playing musical beds because of this.

Then I read one of the first warning signs of Parkinson’s is a failure of  “muscle control” system to work during REM sleep. People in the early stages of Parkinson’s disease may have unexpected movements and act out their dreams during REM sleep. They may jump out of bed, kick, punch, jerk or moving ballistically during REM sleep, at a time when movements are usually suppressed. This sign may appear eight or more years before other Parkinson’s symptoms develop – and it may be the first sign a patient has. Then it all started to make sense.

Someone recently asked me if I would have the children genetically tested to which I responded adamantly no, for a variety of reasons.  It deeply worries and haunts me after watching Hadley sleep that she is more like her father than just her features and temperament. At night, when I start down the path of terrifying thoughts that our girls may have to face Parkinson’s in their future, I just look to the right, see that sweet baby face, listen to her breathe and say a special prayer, just between me and God.

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Take Time Today …… And Everyday!

Appreciate Someone Who Does Something You Take For Granted

Appreciate Someone Who Does Something You Take For Granted

“Top Find” From The Stroke Network

Thank you Stroke Network – The Center For Stroke Recovery for selecting MagnaReady as a “Top Find”!

Top Find: Dressing After A Stroke

Interview With Cafe Yak

SPOTLIGHT ON MOM ENTREPRENEUR: INTERVIEW WITH MAURA HORTON, FOUNDER OF MAGNAREADY

MagnaReady shirts offer ease of dressing to people with limited mobility. They are now making life easier for a larger group of people than their inventor, Maura Horton, originally anticipated. She started the company when her husband, a renowned football coach, was diagnosed with Parkinson’s disease and had difficulty getting dressed independently. With nothing like this currently existing on the market, MagnaReady shirts do not skimp on quality, and offer a dignified way of dressing for those with limited dexterity. This mom of two is a jump-starter, an optimist and a hard worker. She used her previous clothing designer experience, found an investor and a supplier and created a product that is rapidly taking off. I talked to Maura Horton about MagnaReady easy shirting, family influences, business advice, possibilities for a cure and more in this interview.

 

YOU CAME UP WITH THE CONCEPT FOR MAGNAREADY WHEN YOUR HUSBAND WAS DIAGNOSED WITH PARKINSON’S DISEASE. WHAT WAS THE FINAL MOTIVATION TO MAKE MAGNAREADY HAPPEN?

When my husband came home after a football game, his energy gone and said it was a hard day. I thought he was referring to the loss of the game but he said a player helped him button his shirt and he was embarrassed. There haven’t been many challenges with his disease that I am able to help with but this was one change I could help him with.

DO YOU HAVE A BACKGROUND IN DESIGN OR SEWING? HOW DID YOU MAKE YOUR FIRST MAGNAREADY SHIRT?

magnaready blue shirtIn my previous life I was a children’s clothing designer. After having children I stayed home. I had been out of the industry for 8 years. I created my first prototype with a local workroom in NY. I started the process hoping to convert my husband’s existing shirts from button-ups to magnetic, but because of the way they are manufactured that was impossible. So off to plan B!

WHO DO YOU SEE AS YOUR COMPETITION?

No one yet! Velcro closure shirts/clothes is all that has been on the market. I ordered a Velcro shirt for my husband as soon as he had his first challenges with limited mobility in his fingers. The shirt was thin and the fabric fibers got stuck in the Velcro. I knew that there had to be a better option.

WHAT REACTION DID YOU GET FROM YOUR FIRST BUYERS? DID YOU DISCOVER NEW AUDIENCE OVER TIME OR HAVE THE BUYERS BEEN CONSISTENTLY THE SAME?

The reaction I get is at times overwhelming. I ask on the MagnaReady website for people to share their story. They have come back with such a variety of reasons that people are seeking this solution out. All are touching. All to help restore dignity and independence into their (or their loved ones) daily routine. Some have Parkinson’s but most do not. I never believed how many groups this product would bring relief to from Alzheimer’s to Arthritis to Stroke and Wounded Warriors. It’s overwhelming and great now to see returning customers!

HOW MUCH TIME AND CAPITAL DID IT TAKE TO GET IT OFF THE GROUND FROM THE ORIGINAL CONCEPT?

Under $100,000 to date.

From concept to product launch has been about 4 years- that includes patent times.

HOW DO YOU ENSURE SHIRT DURABILITY FOR DRY-CLEANING OR LAUNDRY, CONSIDERING THERE ARE MAGNETS?

magnaready white shirtQuality was my number one driving force. I wanted something I would wear. The manufacturer that we use also produces for a well-known high-end shirt company. I am lucky they would take on my project. Laundering was number 2 – many resources and research went into the correct product to achieve this goal.

HOW DO YOU MANAGE RUNNING YOUR OWN BUSINESS WHILE BEING A MOM? HOW DO YOU MANAGE YOUR TIME?

I try very hard to arrange my day so that when they are home I am present in the moment with my children. I am an early riser, thank goodness, and seem to get many things accomplished before the light of day.

WHATʼS BEEN THE MOST CHALLENGING MOMENT WITH THE BUSINESS SO FAR? WHAT LESSONS DID YOU LEARN?

Challenges thus far, to be honest, pale in comparison to what my husband deals with on a daily basis. I don’t think thus far we’ve hit one that we can’t overcome.

WHAT WAS THE MOST SUCCESSFUL DAY FOR MAGNAREADY? WHERE DO YOU SEE IT IN THE FUTURE?

There isn’t success for me with out a cure. So as a family and a company, we will work diligently to help bring awareness, compassion and understanding. I can only hope someday that Parkinson’s outward symptoms will be as accepted as a beautiful bald-headed cancer survivor is now accepted!

WHAT ADVICE WOULD YOU GIVE TO MOMS THAT WANT TO LAUNCH THEIR OWN BUSINESS?

Dive in! Be fearless! If you’re on the right path many things will happen organically.

HOW DID YOU HANDLE YOUR HUSBANDʼS DIAGNOSIS AS A FAMILY?

As a family we have refused to let it control us. We only had 1 daughter at the time of his diagnosis and were struggling to have another. We couldn’t imagine an only child having to deal with the diagnos on her own later in life. We made a conscious decision to have a second child. Don asked the doctor if there was any reason to not proceed with the planning of our family, the doctor said no- because we all need to believe that there will be a cure in his lifetime. We decided then that we wouldn’t let the disease define our family.

ON YOUR BLOG YOU TALK ABOUT COMING FROM A LARGE FAMILY. DO YOU TURN TO ANY OF THEM FOR ADVICE?

Yes. I often consult with my father. He is a great leader and successful entrepreneur. He worked for 7UP and decided to venture off on his own, creating his own distributorship. His fearless style leads me daily.

DO YOUR HAVE OTHER PRODUCTS FOR LIMITED MOBILITY IN THE WORKS?

Yes. We are launching children’s coats with the same technology. Limited mobility for many children is due to finger dexterity, young children just don’t have the control yet over their extremities to be able to use these complicated closure systems. Someday they will conquer buttons, snaps and zippers, but in the meantime MagnaMini will make getting ready to get out the door a little easier. And, being able to do up their own coat makes children confident when they achieve this milestone of growing up.

We have also secured the patent rights to the same technology for patient/hospital gowns.

IF I ASKED YOUR KIDS, WHAT KIND OF MOM YOU ARE, WHAT WOULD THEY SAY?

Not sure! Having two daughters I hope they would say that I am a strong but loving leader.

Learn more about Maura Horton and MagnaReady at magnaready.com.

Interviewed by Anna Harris.

 

The People You Meet Along The Way

I have been fortunate to meet many new people along our new path and I couldn’t be more thankful.  Same theme exists throughout our conversations; family love, pride and immense respect for their loved ones ability to maintain their dignity.  This picture was sent to me from a families Father’s Day celebration…..He’s 97 and we think he looks GREAT in his MagnaReady blue pinpoint oxford! Thanks for sharing Ann!

At 97 And  Couldn't Look More Dapper

At 97 And Couldn’t Look More Dapper

“He put it on and told me it started closing on its own! He was so happy since he has great difficulty with buttons

Kindness Does Exist

Stumbled upon this today.  I don’t think Don has talked to Coach Etch for years now, but some, in this brotherhood of athletics, are truly kind.  Thank you Coach for thinking of us and sharing our story.

Be Well!

Always Brothers In the Athletic Fraternity

Always Brothers In the Athletic Fraternity

 

Worthwhile Departure for You…Sent Thursday, June 20, 2013

 

I was doing some

research about a

football coaching

acquaintance, & i

came upon these two

web pages:

http://money.cnn.com/2013/04/15/smallbusiness/parkinsons-dress-shirts/index.html

...some folks say:

"Necessity is the

Mother of Invention..."

...i was aware of

Don's battle w/

Parkinson's, but

was trying to learn

what he's doing

lately:

https://magnaready.wordpress.com/tag/don-horton/

...This was somewhat

of a departure from

what I generally

share w/ You, but i

thought You may get

something special from

either, or Both...

...i have

 

Link

Review From Left Hand Style – Style In Its Right Mind – By Stephanie Thomas

Thank you Left Hand Style for the review!

MagnaReady makes a great gift for Fathers Day! If you or someone you love has difficulty fastening buttons, the MagnaReady buttondownshirt will make dressing easier and faster.
It’s a great looking shirt. I appreciate designer, Maura Horton’s attention to fashion as well as function. MagnaReady uses  individual magnets underneath each button for long-lasting dependable closure.

Click to read more

Dear Dad,

Sometimes you read something that makes you pause.  I often wonder where our 10-year-old gets her wisdom.  I believe she may just have an old soul.

Father - Daughter

Father – Daughter

Libby’s Fathers Day letter closed with……I couldn’t wish for a better one.  I love you with or without Parkinson’s.  You’re the same in my heart.