Expect The Unexpected

I grew up in a family of practical jokers. Sandwiched between boys, it was common place to be the brunt of a punchline.  What doesn’t kill us makes us stronger mentality. We never took things too serious, the boundaries were always being stretched.  My father was right there as an instigator, although he would deny it.   During my high school years he thought it was comical to slip a bread tie into our sandwich while my mom was making our lunches.  Yes, a bread tie.  So while talking to friends, catching up on the days after school activities, homework or sports and testing schedule, you would bite down and feel a crunch.  The visual of a half dangling bread tie outside of your mouth and half in was mortifying to any teenager but it did make you chuckle a little too – just on the inside.  At some point I began to roll with the punches – and declare “oh, that’s my dad,  just trying to be funny”. I learned to always check my sandwich before devouring it but, then the day I would ease up and forget, it would be there again. Uncanny sense of timing.

Overnight Beach Field Trip

Overnight Beach Field Trip

Libby is on an overnight beach field trip with her school. An event she has been looking forward to since 1st grade.  They travel as a collective group, explore battleships, marine biology, spending countless hours with each other and bunker down at a campsite.  Her enthusiasm was contagious, at first how exciting, wonder what it will be like, but then I heard a report on the camp food as being described as “wonderfully delicious” and thought maybe this trip was being over sold.  We all became excited for her, the hope of something new and unexpected.

The Unexpected Surprise!

The Unexpected Surprise!

The overnight bags were packed for a solid week in advance.  Double – triple checking constantly. Water Shoes – check – Sweatshirts – check – Pillow – check – Camera, Money, Outfits and Sleeping Bag – check! As I tripped on the overflowing duffle bag and backpack for days, I thought, what could I leave in her bag that would remind her of us. Some moms leave loving notes or pictures…… some leave threatening reminders “to behave”……. I had decided, I was leaving my loving note in the form of a snake / serpent, tucked in her dark sleeping bag- sure to evoke a shrilling scream as she placed her tiny legs inside to sleep. It was also a reminder that when she laid down to close her eyes she had comfort  knowing, we can’t be with her physically but she’s always on our mind.

Life is full of unexpected surprises and last night as my youngest and I lay there and wonder if Libby had “discovered” her love surprise and if she had, why we couldn’t hear a ear piercing scream all the way in Raleigh, my phone beeped with an email.  Here was our unexpected surprise…. the FDA has issued a recall for the DBS (deep brain stimulator) cap manufactured by Medtronic‘s.  Seriously, a recall? We JUST had the surgery… how can this be? It’s not like taking your car in to have an airbag replaced.  There are no “loaners” to request.  I am not sure to date what our path will be to make the correction, but it takes me back to my family and the lessons they taught and we hope to teach, of expecting the unexpected and trying to roll with the punches.

http://www.businessweek.com/news/2013-05-02/medtronic-s-deep-brain-stimulation-device-cited-by-fda-for-flaws

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What’s In A Smile?

This week Don will officially become the bionic man. Watch out Lee Majors, Don Horton is after you! After four weeks of healing, the surgical implants from Deep Brain Stimulation will all be connected.  Many have questions… How does it work? Will you immediately see the results? How long will it last? and What are the benefits?

Well, one of the gifts that we look forward to seeing the most… …. is his simple smile.

Hadley asked “why doesn’t dad smile when he sees me?”  I felt my heart brake into a million pieces right before her big hazel eyes.  I responded reassuringly “he smiles”.  She’s my debater, so I knew this wasn’t going to be over as quickly as I wanted and I desperately needed to put my heart back together in my chest. “Mom, when you pick me up you always smile and I know you’re happy to see me but dad doesn’t.”  “Oh honey”, trying to stall and put together my words to be able to communicate to a five year old child as to why it seems that way. “Your dad smiles when he sees you, when he thinks about you, when he watches you sleep at night and even when you are arguing with your sister.  It’s just that there is a part of his brain that makes it hard to show emotion. You just have to feel it.  When he looks at you, when he takes you for a walk, when he reaches for your hand, when he’s playing with you and when he kisses you goodnight.  You are the highlight of dads day! You are why he wakes up. You are why he breathes and you are why he won’t give up.”  She’s 5, so I know I can relate everything to a song.  I said “Hads you know the Bruno Mars song we always sing… Just the way you are?”  THATS EXACTLY how dad thinks about you.  To quote……

bruno mars

This might be one of the harder parts for me to explain. Parkinson‘s sufferers often lose the ability to control the facial and vocal muscles which allow them to convey a range of different emotions. Although they continue to have natural emotional responses, often, they cannot indicate them in the normal manner, by smiling or frowning or by raising or lowering their voice. Instead, their face appears expressionless.

SO… if THIS

deep brain stimultion


plus (+)  THIS

Image

Don Horton Wedding

EQUALS (=)  THIS

DSC_0203

Hayes Horton and Hadley Horton – The Ultimate Smiles!

Then it will be a success!!