I participated in a radio show for the National Parkinson’s Foundation South Palm Beach Chapter. In closing the host, Jeff Dowd, asked – “What is one piece of advise you would want listeners to take away from our time today?”
My answer was simple.
I said and truly believe – “I hope everyone would be open to listen. Listen to your loved ones. Hear what they are saying verbally but especially non. It’s often what goes unsaid that stays in our hearts longer.”
You can only affect change by listening. Change in perception, change in environment, change for the cause and most importantly change for their quality of life until there is a cure.
I’ve seen a glance down when something is difficult, feelings of I use to be able to do this bubbling up.
We hear comments by others about his progression while he is standing next to us, as if his hearing is impaired and he isn’t able to understand what is being said about him.
We notice looks and hear sighs when someone doesn’t have patience with his slower pace, as if to say you don’t matter.
We listen as he has a conversation with someone and the person he’s speaking with nods and laughs, as if they understood what he was saying but we know, they have no idea.
All things we take in and process. All things attempting to create defeat. Defeat of a soul. Defeat of spirit. Defeat of your accomplishments. Defeat of human life.
You can’t let that happen because the disease takes away enough.
We have accepted that we can’t completely win our battle against Parkinson’s, only keep it at bay for as long as possible, but, we can defeat ignorance.
So listen, and when you see a shift in you loved ones attitude, rise to the occasion and when you hear ignorance, challenge it.
Until there is a cure we will be the change.