The People You Meet Along The Way

I have been fortunate to meet many new people along our new path and I couldn’t be more thankful.  Same theme exists throughout our conversations; family love, pride and immense respect for their loved ones ability to maintain their dignity.  This picture was sent to me from a families Father’s Day celebration…..He’s 97 and we think he looks GREAT in his MagnaReady blue pinpoint oxford! Thanks for sharing Ann!

At 97 And  Couldn't Look More Dapper

At 97 And Couldn’t Look More Dapper

“He put it on and told me it started closing on its own! He was so happy since he has great difficulty with buttons

Support Groups And Swings

My oldest daughter despises swings.  Her face turns a ghostly shade of white at mere push.  It’s always been that way.  I remember our first outing to a neighborhood park in Boston.  She was approximately 6 months old.  I was so happy and proud, bow in hair and camera ready to capture the fun and a wide toothless smile.  I placed her in the black baby swing.  I began the count down 3….2…1.. pushed ……camera posed to shoot and….. instead of delight, I witnessed sheer panic, followed by tears and screams.  This couldn’t be! I quickly scooped her up, held her, and tried again.  What child doesn’t like a swing? Maybe my build up was too much.  As if in lather and repeat, I tried and kept trying.  Smaller pushes each time and still the same reaction.  The walk home was like a walk of shame.  We had a classic case of park failure.  I called Don disappointedly and relayed the news.  As par for course, his practical reaction – “well guess there isn’t a need to purchase playground equipment for the back yard.”

Over the years we, meaning I, periodically kept trying  and at some point in her life she decided she would throw me a bone and stay on for a second, then declare that it was “high enough” and be done.  Now when she goes with friends and they run for the swings, she pretends.  I watch her hop on and barely ever do her feet leave the ground.

EXCEPT for one special time of year, with one special friend.  All bets are off on this day!  In the fall, at our local church they hold a fair fundraiser and they have flying swings.  Our first trip there was with a dear school friend and her family.  Immediately, I crossed it off the list as something we did not need tickets for but my mouth dropped in surprise when Libby said she and Ashley wanted to do “it”.  “The swings?” I asked.  “Yes mom, the swings.”   I then proceeded to lecture that they wont stop the ride in the middle just for her.  The response, “no mom, I’ve got it.”  Rolling with the punches, I watched her get on by herself and then the count down began 3….2…1…..liftoff ensued…….camera ready and this is what I captured.

Image

Sheer delight, but even better than that, simple friendship. I am not sure who extended the hand first but the important part was that both hands found each other.  We continue to go back every fall, together, and I think it’s the only time that Libby will open herself up for a special ride.

That’s how I view support groups and not just Parkinson’s specific support groups.  I’ve been asked several times; do we belong to any or if I have recommendations for such.  My answer is, it is hard to find just the right one.  Continue trying because someday your feet will leave the ground.  Someday, you will know when you have found a safe place to share.  It will be when you reach out to hold someones hand for support and they will be there to not only receive it but, not let go until the ride is over.

Everyone Has A Story. Please Share Yours!

Shipping Libby !

Shipping Libby !

As we are shipping out products your stories are coming in and for that, I am forever grateful.

When we launched the MagnaReady website and I spoke with the developers, I specifically requested a section in which we encourage people to share their stories. ALL people….ALL stories – mothers, fathers, sisters, friends, children, aunts and uncles of loved ones with mobility issues. We all have a unique story and as we are shipping shirts out, these stories keep us on track. I personally read everyone of them and am equally touched by what is shared. So honest, so raw and all in the same spirit of people looking to ease a daily burden.

I hope to share some stories along the way. For the last few years in preparation to launch MagnaReady, I have done extensive research of groups of people that we hope to help. Yesterday however, I read a story that gave me great pause; this is one group I hadn’t thought of. I will highlight a piece.

I am purchasing this product for my father. He is 67 and he is blind. His sight was taken from him about 10 years ago. He continues to hold on to every bit of independence he can.

We hope to stay true to our mission statement- of helping as many people as we can, dress with dignity. Please keep sharing your stories.