Do You Hear What I Hear?

I participated in a radio show for the National Parkinson’s Foundation South Palm Beach Chapter.  In closing the host, Jeff Dowd, asked – “What is one piece of advise you would want listeners to take away from our time today?”

My answer was simple.

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Because you are important…. I listen.

I said  and truly believe – “I hope everyone would be open to listen.  Listen to your loved ones. Hear what they are saying verbally but especially non. It’s often what goes unsaid that stays in our hearts longer.”

You can only affect change by listening.  Change in perception, change in environment, change for the cause and most importantly change for their quality of life until there is a cure.

I’ve seen a glance down when something is difficult, feelings of I use to be able to do this bubbling up.

We hear comments by others about his progression while he is standing next to us, as if his hearing is impaired and he isn’t able to understand what is being said about him.

We notice looks and hear sighs when someone doesn’t have patience with his slower pace, as if to say you don’t matter.

We listen as he has a conversation with someone and the person he’s speaking with nods and laughs, as if they understood what he was saying but we know, they have no idea.

All things we take in and process. All things attempting to create defeat. Defeat of a soul. Defeat of spirit. Defeat of your accomplishments. Defeat of human life.

You can’t let that happen because the disease takes away enough.

We have accepted that we can’t completely win our battle against Parkinson’s, only keep it at bay for as long as possible, but, we can defeat ignorance.

So listen, and when you see a shift in you loved ones attitude, rise to the occasion and when you hear ignorance, challenge it.

 

We are in this together!

We are in this together!

Until there is a cure we will be the change.

 

 

 

 

 

 

 

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NC State vs North Carolina or Moving Day

Today was the day. A BIG day.  One that coaches plan for, fans live for and here at NCSU, athletic directors fire for . The biggest rivalry opponent in your house- on your turf – ready to accept defeat.  Today NC State (Wolfpack) and UNC (Tar Heels) would face each other in a contentious in state rivalry that has turned into a controversial “battle of the state.  For those of you who are from out of the area, it is similar to the OSU vs Michigan, Alabama vs Auburn or Florida State – Florida feud.  Basically, it’s a game where at the end of 60 minutes winners have bragging rights for 364 days and that is the equivalent to gold around here.

But for us, the first time in many years, we were not apart of it.

No, today as a family, we took part in a much bigger, and in my humble opinion, a more important fight.  One that is on the national level.  The fight for a cure to Parkinson’s.  Moving Day is a walk hosted by the National Parkinson’s Foundation.  I think it a was a little piece of divine intervention for our family that it was held on the same day.  I couldn’t help but draw a few comparisons.

There was still team vs team donning colors and a uniform.

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Moving Day – Raleigh

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Hadley’s favorite team!

War paint  and tattoos could be spotted everywhere.

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Hadley asked- What does this mean anyways.?… The sign of HOPE baby, the sign of HOPE!

The cheerleaders were motivational and spirited!

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A senior cheerleading group! Life can’t get better than that!

The proverbial crazy fan spotted!

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Spirit was boundless!!

And at the end of the day we left feeling victorious because we ALL had won! Last we heard the tally, funds raised to help the cause was well over 100,000.

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We love you dad!

“All we were worried about was one, and it was this one,” Fedora said on being 2-0 against NC State.  We couldn’t agree more!  All we are worried about now is one too, but it’s Parkinson’s and has stakes higher than any rivalry game out there  – because this is real life, not a game.  Besides, five of those winning footballs take up a lot of space on the shelves…

NCSU vs UNC Winning BAll

How many of these does Dave Doeren have?