A thing we have learned on this journey, is that a disease affects the whole family and to not listen and validate our children’s voices would be ill-advised.
Children’s words are often uncomplicated and simplistic.
Our eldest daughter came down the stairs a year ago, handed me a letter and declared “I need you to mail this.”
I hesitated…… my brain unable to process what was happening…… came to… and said yes.
I opened it.
Read and re-read it.
Wept for her reality.
Drove to the post office
and as I slipped it in the mail slot, I felt overwhelmed by her ability not only to articulate but to EXPECT change.
Libby did receive a response back from The President.
I think she felt she was heard.
Her truth was hard to handle but the real truth of being fired because you have a disease is a blinding reality for too many people in our community.
We will affect change.